A survey done by Wellcome Trust Sanger Institute in the UK of nearly 7,000 people has revealed that 98 per cent want to be informed if researchers using their genetic data stumble upon indicators of a serious preventable or treatable disease. The study, which comes after the government’s announcement that Genomics England will sequence 100,000 genomes by 2017, begins an important and on-going conversation about how our genomic data is used. The study was published in April 2015 in the European Journal Human Genetics.
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Most People Eager to Know the Secrets of Their Genetics